Odds stacked against him

2012 May 23

Created by Samantha 11 years ago
Today we went see thr Dr who treated Matteo in A&E, to go over Matteo's care during pregnancy, birth, death and post mortum results in detail. He told us that Matteo was not compatible with life from very early on in our pregnancy. There was nothing they could've done, even if diagnosed. He was never mine to keep. If he had been diagnosed during pregnancy we would've been offered a termination for medical reasons. This didn't happen because his condition can only picked up on a detailed heart scan. Matteo was lucky to have even made it into the world and he lived for 10 days! I'm glad we never knew he was so poorly because for those precious days we had him, we enjoyed him, those days were so special and we were overjoyed. I will never forget how happy and complete he made me feel when i held him, watched him sleep, suckle from me or even when he peed all over his big sister! The Dr told us he wasn't in any pain, I pray for this to be true. He would've just felt tired. I pray that he passed away peacefully and i pray that he felt our love, I hope he knew how much we loved him and how much we still do love him. We are awaiting genetic results, which are testing for Barth syndrome. It's a very rare syndrome and Matteo's samples are actually being tested in a lab in France so may take a little while longer. On the positive the Dr believes we're not facing a genetic problem and it's very unlikely to happen again. All in all many of my questions have been answered and i finally understand medically why my son died. He was a little fighter xxx God bless him and all the little angels xx