Appointment with doctor to discuss post mortem results.

2012 April 03

Created by Samantha 12 years ago
It was a tough day, i spent most of the morning terrified they would tell me something horrific, tell me i'd done something wrong. Well this is how it went....when we arrived me and Antonio were taken into a small court room, quite intimidating but expected as we weren't there to just to receive pm results, we were concluding the inquest with the coroner. It was actually quite nice to meet the coroner put a face to the man who we spoke to on the phone, he kept us updated on our son when he was under the pathologist's care, felt like he knew my son. Results - sorry for the medical terms, will try my best to explain. My son died from Left ventricular failure - one of the chambers on the left side of his heart was working too hard to pump blood around his body and it built up with fibrous tissue (endocardial fibroelastosis) which was caused by Aortic Stenosis, his main artery was thicker than it should've been, making it very hard for his heart to pump the blood around his body. His little heart just couldn't fight anymore. The most valuable information i was given was that the doctor believed my son wouldn't have been in pain, just tired, "like after a long run" the doctor said. I will hold onto this, hearing this makes me look back at that tragic day a little less darker than i did before. If it's not genetic the doctor assured me it's very unlikely to happen again and is 'just one of those things that happen.' I am still awaiting genetic results, they are testing for barth syndrome. The pm results suggest that it's relatively unlikley so im holding onto hope on that. They can't tell me just yet how long i'm likely to wait for these results. After the appointment we went to visit Matteo's grave, we decorated his little spot with easter decoartions and colour changing solar lights. I felt quite at peace and felt like I've found some closure. Sleep tight little man, Love you and miss you always xxx